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Where there is a will, there is a ‘Champion’.

Where there is a will, there is a ‘Champion’.

Symptoms of rare diseases often creep up quietly, rather than arriving with the brutal shock of a sudden lifestyle upheaval. The change is gradual—unyielding and relentless in its impact. One moment, I was darting around the globe, making things happen with agility and speed; the next, it felt as though someone had chained a 1 kg weight to my ankle..

From the world of business and glamour to that of rare genetic disease: A Mom’s resolute journey as India’s torchbearer of Prader-Willi Syndrome

## From the world of business and glamour to that of rare genetic disease: A Mom’s resolute journey as India’s torchbearer of Prader-Willi Syndrome

Ansh and his mother Shikha Shikha’s family migrated from Rajasthan to Kolkata several generations ago and set up a flourishing textile business. She had always seen a life of plenty, although tempered with discipline and hard work. She was gifted with great physique, charming looks, and a sharp mind, all of which floored young Vikram whom she met while still in high school. After graduation, Shikha landed a job in a garment export company. She handled the competitive Europea

Writer: Sudha Bhattacharya

Sudha Bhattacharya

Dec 28, 202526 min read

4,505 views

2 comments

Duchenne Muscular Dystrophy: How a self-taught dad is using state-of-the-art science to save his son

## Duchenne Muscular Dystrophy: How a self-taught dad is using state-of-the-art science to save his son

Ambrish and Nikita Kapadia Physician-scientists are perhaps some of the busiest people on the planet. With heavy clinical duties on top…

Writer: Sudha Bhattacharya

Sudha Bhattacharya

Jun 13, 202322 min read

1,650 views

7 comments

Spinal Muscular Atrophy : From being denied school admission to reaching the portals of IIT Kanpur

Spinal Muscular Atrophy : From being denied school admission to reaching the portals of IIT Kanpur

Where the mind is without fear and the head is held high - if one were to put faces to Rabindranath Tagore’s people, Archana Vashishta Panda, her husband Anup Panda, and daughter Anushka would come very close. And yet, there was a time when fear and hopelessness had become Archana’s constant companions. Her ten-month old baby, who was not just the apple of Archana’s motherly eye, but could charm…