The GNE Dialogues
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Where there is a will, there is a ‘Champion’.
Symptoms of rare diseases often creep up quietly, rather than arriving with the brutal shock of a sudden lifestyle upheaval. The change is gradual—unyielding and relentless in its impact. One moment, I was darting around the globe, making things happen with agility and speed; the next, it felt as though someone had chained a 1 kg weight to my ankle..
## Turning A Bedroom Into The Safest Home ICU
How two sisters mastered the technology of critical care to help their mother live with ALS. Darji was a profoundly devout man. His piety…
Sep 21, 202437 min read
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