ANNUAL CONFERENCE '25

WWGMAnnual Conference 2025

WWGM ANNUAL CONFERENCE.jpg

Event Schedule

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WWGM Annual Conference 2025 is an online event occurring on March 8 and 9, 2025. The event will have globally renowned speakers who are leading scientists working on treating GNE myopathy; medical practitioners with extensive experience in seeing patients with GNE myopathy, patients advocating for GNE myopathy and much more. There will be a special closed door session for people living with GNE myopathy. Register here to receive a link to the event.

Summary

Summary of AC 2025

GNE Myopathy Patient Day and Symposium (March 8-9, 2025) Key takeaways from the meeting : It was the sixth Patient Day organized by WWGM, with the purpose to provide a platform for patients to interact with GNE Myopathy specialists, share their concerns with Doctors, listen to latest research directions and therapies from Scientists, learn about government initiatives in rare diseases, and gain from the experiences of other patients. The meeting was held online.