Rare Disease Day

Scientific Advisory Committee(Under Board of Trustees)

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One of the major objectives of WWGM is to promote research that will lead to finding cure for GNE Myopathy and other rare genetic disorders in the shortest possible time. In order to achieve this, a Scientific Advisory Committee (WWGM-SAC) has been constituted that will formulate policies and oversee their implementation. WWGM-SAC members are eminent scientists with significant contributions in both basic and clinical sciences. The members also have extensive experience in formulating and implementing policies at the national level. downloaded from here….