Rare Disease Day

Participation in policy development(under Activities & Participation)

0000-00-00

National Policy for Treatment of Rare Diseases (Ministry of Health)

We believe that this draft policy is not a comprehensive one and appears to address only a specific problem faced by a few patients of Lysosomal Storage Disorders. It has left out some of the larger issues of capacity building and research towards development of cures for rare diseases. For our detailed response downloaded from here….