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Specific Activities of WWGM for which Donations are Requested

  • Increasing awareness Click here for details
    a. Organizing meetings of researchers, clinicians, paramedical experts, policy makers, patients and their caregivers for increasing awareness, understanding and knowledge among all stakeholders
    b. Participation in clinical conferences
    c. Development of multimedia material for spreading awareness
  • Funding support for diagnosing patients through DNA test Click here for details
  • 3. Enhancing quality of life for patients Click here for details
  • 4. Research leading to cure for the disease Click here for details
    a. Funding support for generating rodent model of GNE myopathy reflecting Indian patients
    b. Funding support for developing a tissue bank and stem cell-derived cellular model of GNE myopathy.
Your contributions can go a long way towards funding a cure and transforming the lives of many rare disease patients.
The activities of WWGM require resources so donations are crucial.
Substantial funds are needed to support new research initiatives and to bring existing research from laboratory to the patients, which includes clinical trials. Time is of the essence to patients as they continue to lose muscle every day. We at WWGM need to get help to the patients as soon as possible and in every possible way. Resources are also needed to raise awareness about rare genetic diseases to the general public, and to develop accurate, low-cost diagnostic methods to reduce the frequency of incorrect diagnosis. Since genetic testing is expensive and most patients cannot afford it, we would like to help patients in getting tested and accurately diagnosed. WWGM is a registered charity and all donations are exempt from income tax in India under Section 80G of the Income Tax Act (please quote exemption No DEL_WE27181-18102016/7652).

Please consider providing us with some of your details through the following form so that we can acknowledge your contribution and send you a receipt.
If you would like a receipt/acknowledgement of your donation, please provide us with your personal details below. Anonymous donations also welcomed. Your support and donation will go a long way to meet some of our goals.

Thank you for your generous support!

Way of payment

ONLINE TRANSFER

Account name: World Without GNE-Myopathy (India)
Bank: SBI, Jawaharlal Nehru University, Godavari Hostel Branch No. 10441, New Delhi-110067
Account No. 35340458102
IFSC Code: SBIN0010441
MICR Code: 110002428
SWIFT Code: SBININBB548


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World Without GNE-Myopathy (India)
1123 Sector B1, Vasant Kunj
New Delhi-110070