Blogs by GNEM Patients

A patient advocate with GNE Myopathy discusses recent research, clinical trials and invites patients to share their story.
http://taratalksgnemyopathy.blogspot.com/
A patient with GNE Myopathy narrates her experience of what it is like to live with the disease.
http://livingwithhibm.blogspot.com/
A patient with GNE Myopathy shares her experience with images and illustrations.
http://www.greengreengrass.typepad.com/